Wednesday, May 6, 2009
A special moment...
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Ainsleigh's 1st Lost Tooth
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ISD vs. ME
Ok, so I know I have been VERY bad lately about updating everyone, so sorry!!! Here it goes... We had two ARD's with the school district (one for Brycen and one for Ainsleigh). Ainsleigh's did not go well. The school district, after reading the neuropsychologist's report, is sticking to their guns that Ainsleigh does not have an educational need for special education services (speech, occupational, etc.), and are taking the "wait and see" approach to educating her. I, of course, held to my guns that I do not believe in "waiting to see a child fail" before acting as a way of educating a child. We (Brent and I) decided to "play nice" and agree that we would enroll her without services set up, and "wait and see" how she responded to Kindergarten. The look of triumph was very short lived on their faces when I very "nicely" but in Wendi style "bluntly" let them know that I would be watching like a hawk and the second problems arose I would be on them (to quote an old teacher of mine) "like white on rice", but this time I would bring out the big guns (aka my bulldog advocate that is chomping at the bit to tear into them) if steps were not taken to give her the support she needs to receive her "free, appropriate education". Though I do not like the idea of going toe to toe with the ISD, I will do whatever is necessary to make certain Ainsleigh is not put in a situation that will cause her to fail.
Brycen's ARD went much better! He did not receive the in home behavioral trainer because (to put it plainly) he is not violent enough. I did not disagree and we moved on to our next agenda (the one I was really more concerned with) of Brycen's eligibility of ESY. He WILL be going to ESY!!!!! YEAH!!!! ESY is Extended School Year, and I really wanted this for him so that he would not lose the skills and progress that he has worked for!!!! He has progressed SO MUCH!!! He is really trying to talk and sing, and has a few words now that he can actually say!!! Most do not have meaning yet, but I am still SO PROUD of HIM!!! : )
I had Ainsleigh transfered to Brycen's school and the principal there as arranged for Ainsleigh to be placed in the Kindergarten class near Brycen's class with a teacher who has experience working with children on the spectrum. Also, the teacher and the principal reassured me that they would be talking with and including Brycen's teacher in decisions regarding Ainsleigh. This does make me feel better and I really hope it benefits Ainsleigh greatly!! We'll see and I'll keep you posted!! : )
Brycen's ARD went much better! He did not receive the in home behavioral trainer because (to put it plainly) he is not violent enough. I did not disagree and we moved on to our next agenda (the one I was really more concerned with) of Brycen's eligibility of ESY. He WILL be going to ESY!!!!! YEAH!!!! ESY is Extended School Year, and I really wanted this for him so that he would not lose the skills and progress that he has worked for!!!! He has progressed SO MUCH!!! He is really trying to talk and sing, and has a few words now that he can actually say!!! Most do not have meaning yet, but I am still SO PROUD of HIM!!! : )
I had Ainsleigh transfered to Brycen's school and the principal there as arranged for Ainsleigh to be placed in the Kindergarten class near Brycen's class with a teacher who has experience working with children on the spectrum. Also, the teacher and the principal reassured me that they would be talking with and including Brycen's teacher in decisions regarding Ainsleigh. This does make me feel better and I really hope it benefits Ainsleigh greatly!! We'll see and I'll keep you posted!! : )
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Friday, April 17, 2009
Autism: Breaking Barriers (3)
This video discusses one story of a child with autism that "recovered". There is alot of controversy with this topic in the autism community. Most people know of Jenny McCarthy's son and her story that he is "recovered" from autism. The percentage of children who "recover" from autism is VERY low, and I find to be suspect. To me when I read about this, my first thought is always the same: they regressed then "recovered". I am always happy to hear of success stories of autistic children because I am always for progress, for success, for them!! But the skills were there at one time, so "recovering" those skills seems possible. But what about for those who never had those skills? That is our story and I would like to see if there is documentation on children born with autism (meaning shows signs from birth) who "recover". Brycen showed signs of autism from birth and did not develop typically. He never regressed because he never acquired developmental milestones then lost them. I pray every day that his progress will continue to grow, leaps and bounds, and that we never hit plateau. To me, Brycen is who he is! I want him to have a full, happy, wonderful life, but I refuse to look at him as though there is something wrong with him!! God made him the way he is and to want a cure or want him to "recover", to me means that I do not accept him for who he is... I am his mother and he is my blessing!! Now I know that comment brings alot of anger and contempt from some in the autism community, but it is my opinion and I am sticking to it!! Do I want him to develop, mature, progress? Of course!!!!! But I do not want him to "get better" because he isn't sick!!!! Neither is Ainsleigh!!! They were created the way they are and I love them and every single "quirky", "unique", "different" characteristic of who they are!! Some will say that I am in denial or naive, but those of you who really know me, know that those are not words that describe me! Anyway, that is my take on things and this is my blog, hahaha!!! : )
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Thursday, April 16, 2009
6 Words... Amazing!!!
Ainsleigh and I visited Brycen's class today (I had to drop off some soy milk for Brycen), and we found out that Brycen said 5 words today in class!!!!! He said: fish, car, boat, hat, and bed!!! Then while I was there, he said "apple"!!!! He is SO AMAZING!!!! This weekend he said "mama" for the first time!!! He is doing SO WELL!!! He knows his alphabet, uppercase and lowercase, and he is even getting better with his letter sounds!! I am going to try to get video of him singing with his videos (Yo Gabba Gabba), it is SO CUTE!! We have been working on colors and animals, but all in due time. Also, his teacher told me that Brycen is actually taking their breakfast wagon to the cafeteria by himself, and coming back to the classroom and opening the door by himself!!! I think I almost fell over when she told me that, I know my mouth was wide open (hahaha)!!! : ) I will share a moment with y'all that was very heartwarming and tearful for me. Yesterday, the kids and I were playing in the living room after Brycen got home from school. We were standing in the middle of the livingroom and Brycen just reached up and grabbed my hand. I was a little dumbstruck at first then I started looking around to see if there was something that he was wanting (usually he only touches my hand to indicate he wants something out of reach), and I couldn't see anything that he would want. Then the realization hit me...... he was HOLDING my hand!!!!!! I couldn't believe it!!!! He just wanted to hold my hand, and that was it - not requesting, no demands... just simply wanted to hold my hand!!!! The tears started flowing and I cannot express to you the emotions pouring through me!!! So many people take the little things for granted but I don't... to have my little boy actually *want* to hold my hand then actually *hold* it was so precious and awesome!!!! For those of you who do not understand, Brycen does NOT like to have his hands touched and he has NEVER held another person's hand without being forced or prompted, even then he lets go as soon as he physically can! Anyway, I just wanted to share that moment, it was so beautiful to me!! Wish I could have gotten it on video, haha!!! : ) Priceless!!!!!
Autism Awareness (Video)
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Autism: Breaking Barriers (2)
This video talks about Sensory Integration Dysfunction or Disorder. SID is a disorder of the senses (smell, sight, hearing, touch, etc.) and it can be hyper (over sensitive) or hypo (under sensitive), or a combination of both. Alot of individuals with autism also have SID.
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Labels:
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autistic,
life,
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